罕见病发展中心
2013年在上海成立的组织
条目
历史版本
简介
罕见病发展中心致力于增进罕见病患者群体、罕见病组织、医学专业人员、医药企业和政府部门等各相关方的交流与合作，加强社会公众对罕见病的了解，提高患者的罕见病药物的可及性，推动罕见病相关政策出台，开展罕见病领域国际交流合作，促进中国罕见病事业发展。
罕见病发展中心
Chinese Organization for Rare Disorders (CORD), founded by China-Dolls Center for Rare Disorders in June 2013, is a non-profit organization specializing in fields of rare diseases. CORD works to promote exchange and cooperation among rare disease patients and organizations, medical specialists, pharmaceutical companies and governmental agencies. It is dedicated to enhance public understanding of rare diseases, improve patients’access to orphan drugs, foster formulation of related rare disease policies, initiate international exchange and cooperation, and contribute to development of rare diseases in China.